
Yesterday we went to the doctor. What a nightmare. You know, I really don't mind if a doctor is running late. I can deal with that, but tell me he is running late. I hate when they know he is running an hour behind and NO one tells us!! The appointment time was 12:20. We had to be there at 12 to fill out some paper work. We finally saw the doctor at around 2. We had Maxx and Josie with us and the was a mistake. It was lunch time and nap time and that equals train wreck.
The doctor said that we don't want a craniotomy. If they did that they would have to cut open his current scar and make a matching one on the other side. Then they would fold his face down and go in through his forehead. So the plan is to go in through his nose again. This time the ENT and Neoro doctor will be involved. He said they will be doing more on the inside, moving things around and such. The plan is he will go in on the 20th and they will put a drain in his back. He will spend the night and the surgery will be first thing on the 21st. He will be flat on his back for at least 5 days and will get to gradually get up. He probably will not get to go home until the 27th or 28th if then. So he will be in the hospital for Christmas.
I know you are probably thinking, why does he have to have this done now and be in the hospital for Christmas. There are three reasons:
1- With it being flu season and germs everywhere, the fact that he has an open hole to his brain can cause him to get meningitis. We never got an official answer, but we had 2 different doctors tell us his counts showed he DID have meningitis last time and that is what landed him in the hospital in the first place.
2- We have already met our insurance deductible for this year. Between Maxx being born, his two hospital stays and Dan's hospital stay, we won't have to pay a dime for this surgery.
3- If we wait until January our deductible resets. Dan's company is also changing insurance providers and the insurance is going to be worse than what we already have and it will cause us to have even more out of pocket expense. So we are opting to do it NOW!
Last night we went and saw Santa. I am sure most of you have seen the pictures on Facebook. I really had fun. It is one of those things that I love to do! Josie just kept crying and saying, "hold me mommy, hold me mommy". Maxx was so fun to watch. He wasn't sure about Santa, but was just as happy as could be, until he realized Josie was crying and felt he needed to cry too.
For Josie's first Christmas we got her a small Elmo doll. She was only about 6 weeks old. To this day, her prize possession is her Elmo. We have wanted to get Maxx something similar, but not an Elmo. We finally figured out that we would get him a Cookie Monster. We have been on a hunt for a Cookie Monster for the past several weeks. Last night Dan parked at Burlington Coat Factory at the Mills. He saw some cool things when walking in and he wanted to stop on the way out. While walking around he did it. HE FOUND COOKIE MONSTER!!! It is a bit smaller and as a bonus it comes with a book. The best part is it only cost $5. I don't know that last time I have seen Dan so excited over something. He was like a kid in a candy shop. It was just too cute. Major SCORE for us!!
Everyday when I lay Josie down for her nap she always has to sing before she goes to sleep. No particular song, just words to her own tune. It is one of my favorite things she does. She just takes all the words she knows and sings them. Today, like some days was her, "my mommy is the best mommy in the world" song. At one point she even sang,"I wuv mommy". Just enough to make my heart melt and make being a mommy the best thing in the world!!!
No comments:
Post a Comment